No excuses, no limitations
This is not one of those inspirational handicapped person defies all odds story.
This is my story. I was born with a neuromuscular disease, spinal muscular atrophy. As a result of this I am a quadriplegic. This is the least interesting thing about me.
I truly have lived my life the way I want to. I was always the first of my girlfriends asked to dance when we went clubbing, I married the love of my life 22 years ago and we love to travel. I have found my passion as a mental health educator with Canadian Mental Health.
It’s so cliche but life truly is what you make of it. When I was born my parents were told that I would not live to see 2 years old. This year I will be 50. There are definitely some ups and downs. Currently I’m fighting for a treatment that will halt the progression of my disease and possibly give me back some strength. For reasons I can not fathom the government won’t cover it for anyone over the age of 12. The treatment is approved in over 40 countries. I must somehow live my best life while I lose my abilities knowing there is a treatment that would stop the progression. It is devastating to see my peers in other countries improve while my health continues to decline. This has been a roller coaster to say the very least. In the meantime though I must continue to live my life to the best of my ability. I don’t identify as a disabled person. Identifying this way puts the negative before the positive. I am just Laurie.
Related LibGuide: Human Library by Leah Townsend
- Wednesday, March 20, 2019
- 9:30am - 10:30am
- Library 2nd floor